Lily was diagnosed with Infantile Huntington’s Disease.
Lily has two older brothers, Campbell and Lucas, a younger sister Ella and her mother Jamie.
Lily has such a great energy regardless of her condition and is living her best life.
The Fight for Connar team where able to assist Lily and her family with home renovations, specifically making a wheelchair friendly bathroom. We were also able to make hand moulds have some internet related fun.
About our families
Families are the reason we started Fight for Connar.